Supporting people with 22q11.2 Deletion or 22q11.2 Duplication Syndrome.
Awareness, Education, Community & Support
Celebrating 30 years
Sat, 01 Mar
|Randwick
Rare Disease Day -Imagine more: how you can shape the future of rare disease & 22q
Join us for a special day dedicated to celebrating and empowering the rare disease community! This family-friendly event brings together individuals living with rare diseases, their families, and the wider community to connect, share, and inspire.
Time & Location
01 Mar 2025, 9:00 am – 5:00 pm
Randwick, High St, Randwick NSW 2031, Australia
About the event
🌟 Join Us for a Rare and Empowering Family Day! 🌟
Date: Saturday, 1st March 2025Time: 9:00 AM – 5:00 PMLocation: Lecture Theatre & Foyer, Sydney Children's Hospital Network (Randwick)
This Rare Disease Day, come together with families, advocates, and the rare disease community for a day of connection, inspiration, and empowerment!
🎤 Highlights of the Day:
Welcome Address: Hear how Sydney Children's Hospital Network is advancing rare disease care.
Inspiring Talks: From lived experiences to community-driven change, including an address by Maria Kamper.