top of page
Supporting people with 22q11.2 Deletion or 22q11.2 Duplication Syndrome.
Awareness, Education, Community & Support
Celebrating 30 years
News and Events
Sat, 01 MarRandwick01 Mar 2025, 9:00 am – 5:00 pmRandwick, High St, Randwick NSW 2031, AustraliaJoin us for a special day dedicated to celebrating and empowering the rare disease community! This family-friendly event brings together individuals living with rare diseases, their families, and the wider community to connect, share, and inspire.
Fri, 16 MayNorth Narrabeen16 May 2025, 3:00 pm – 18 May 2025, 12:30 pmNorth Narrabeen, 38 Lake Park Rd, North Narrabeen NSW 2101, Australia🌟 Join us for the 22q Family Camp! 🌟 From May 16-18, 2025, at the beautiful Sydney Lakeside Holiday Park, families affected by 22q will come together to connect, share experiences, and build lasting friendships. This special weekend is all about community and understanding.
Sun, 18 MayLocation is TBD18 May 2025, 10:00 am – 3:00 pmLocation is TBDJoin us for the annual 22q at the Zoo 2025. We hope to have locations across Australia and New Zealand.
bottom of page